Patient Education Programs

The health and well-being of our patients is our top priority. Please note that concerns regarding Novel Coronavirus (COVID-19) may affect our events. We are monitoring the situation closely and will send out immediate communication to registered attendees if there are any changes in plans. Please click here for more information from our Chief Medical Officer Hearn Jay Cho MD, PhD about how to minimize your risk of contracting the virus.


Order MMRF Literature

Download or order a copy of the MMRF Patient Toolkit. It includes our managing Myeloma Resource Brochure, Multiple Myeloma Disease Overview, Multiple Myeloma Treatment Overview, Multiple Myeloma Caregiver Guide and Precision Medicine brochure. Multiple quantities are available.

Available to US addresses only. The MMRF cannot ship to addresses outside the USA.

Order Patient Toolkits

 

 

 

Outside the US? Feel free to download the kit content below.

Download these booklets using the links below and make your own notes as you read through them. The more you learn about multiple myeloma and its treatments, the more empowered you will be in your multiple myeloma journey.

Download The MMRF reading materials in Spanish.


High impact topic videos, or HITs, are videos that use engaging animations and narration to present information on topics of importance to myeloma patients and their caregivers. Presented in a patient-friendly manner and viewable on iPads, tablets, and smartphones, these HITs bring to life and explain concepts that can sometimes be difficult for patients and caregivers to understand.

The MMRF wishes to thank the following reviewers and contributors to these HITs: Craig Emmitt Cole, MD; Ola Landgren, MD, PhD; Louise Miller Lavin, BSN, MSN, LPCC; Joshua Richter, MD; Nina Shah, MD. .

Title Description
MRD (Minimal residual disease) Learn what MRD is, how it is measured, and what it might mean if your doctor tells you that you are MRD positive or MRD negative.
Immunotherapy Understand how your immune system interacts with your myeloma, and how new immunotherapies are helping patients’ immune systems recognize and destroy myeloma cells.
Genomics Hear how doctors can use genomic information from your myeloma cells to provide therapy that is tailored to your myeloma subtype.
Learn Your Labs This video provides information on laboratory tests that myeloma patients may undergo. Learn about why and how the tests are done and what the results mean.

To keep multiple myeloma patients informed on the latest updates during the COVID-19 pandemic, Drs. Hearn Jay Cho, Saad Z. Usmani, and Zainab Shahid are leading eight weekly 30-minute webcasts. Each webcast will focus on a specific topic and feature guest speakers to present important information and address questions and concerns regarding the COVID-19 pandemic.

Note: You only need to register once to be able to participate in any (or all!) of the eight webcasts.

Topics include:

  • Basics of COVID-19 disease (testing, treatment, and trials)
  • Preventative measures
  • Impact on treatment for newly diagnosed myeloma patients (for example, transplant deferment)
  • Impact on treatment for relapsed patients and clinical trial availability
  • Supportive care measures for patients (including bone health, intravenous immunoglobulin therapy, vaccinations, and more)
  • Social support, institutional, regional, and national foundations
  • COVID-19 database and specimen collection efforts
  • Personal perspectives on COVID-19 infection

Join us every Tuesday from June 2nd - July 21st at 6:00PM EDT

Register Now


Webinar Topic Date
Learn Your Labs Tuesday, February 4, 2020 1:00PM ET View Recording View Slides
Supportive Care Wednesday, March 4, 2020 1:00PM ET View Recording View Slides
Smoldering Myeloma Thursday, April 23, 2020 1:00PM EDT View Recording View Slides
Managing Myeloma During the COVID-19 Pandemic Wednesday, May 20, 2020 1:30PM – 2:30PM EDT View Recording View Slides
Multiple Myeloma Highlights From the 2020 American Society of Clinical Oncology (ASCO) Annual Meeting Tuesday, June 16, 2020 1:00PM – 2:00PM EDT Register

Date Location of Event Program Chair(s)
March 21, 2020 Virtual Patient Summit Larry D. Anderson, Jr., MD, PhD
Ankit Kansagra, MD
View Recording  View Slides

Date Location of Event Program Chair(s)
May 2, 2020 Virtual Robert Z. Orlowski, MD, PhD
Elisabet E. Manasanch, MD
View Recording View Slides

2019 Patient Webinars

Webinar Topic Date
Multiple Myeloma Patient Highlights: 2018 ASH Annual Meeting Wed, Feb 6, 2019 1:00PM  View Recording  View Slides
Innovative Clinical Trials Wednesday, March 6, 2019 1:00PM  View Recording  View Slides
Emerging Immunotherapy Treatments in Myeloma CAR T-Cell Therapy and BiTEs Tuesday, April 2, 2019 1:00PM View Recording  View Slides
MRD/Blood Biopsy Wednesday, May 15, 2019 1:00PM ET  View Recording  View Slides
ASCO 2019 Highlights Tuesday, June 18, 2019 1:00PM EDT View Recording View Slides
Vaccines and Monoclonal Antibodies Wednesday, July 10, 2019 1:00PM ET View Recording View Slides
MMRF CoMMpass(sm) Study Updates Wednesday, August 21, 2019 1:00PM EDT View Recording View Slides
Daily Updates from The International Myeloma Workshop September 12, 13, 14, 2019 View Recordings
New Drug Approval: What Does the Arrival of XPOVIO (selinexor) Mean for Multiple Myeloma Patients? Thursday, October 17, 2019 4:00PM EDT View Recording View Slides
Maintenance Therapy for Multiple Myeloma Patients: Understanding Treatment Options Wednesday, November 20, 2019 3:00PM ET View Recording View Slides
Multiple Myeloma Highlights From the 2019 American Society of Hematology (ASH) Meeting & Exposition Wednesday, December 18, 2019 1:00PM ET View Recording View Slides

2019 IMW Patient Symposium

Date Location of Event Symposium Topic
September 15, 2019 Boston, MA Updates from The International Myeloma Workshop View Slides View Video

2019 African American Community Cancer Workshops

Date Time Location
September 19, 2019 5:45 PM - 8:30 PM EDT Louisville, KY Register
September 28, 2019 11:00 AM - 2:00 PM EDT Washington, DC Register
October 10, 2019 11:00 AM – 2:00 PM CDT Chicago, IL Register
October 19, 2019 11:00 AM – 2:00 PM CDT Southaven, MS Register
October 25, 2019 5:00 PM – 8:00 PM CDT Dallas, TX Register
November 9, 2019 11:00 AM – 2:00 PM CDT Oakland, CA Register
November 14, 2019 6:30 PM – 8:00 PM CDT New Orleans, LA Register

2019 Patient Summits -  Program Schedule

Date Location of Event Program Chair(s)
March 9, 2019  Tampa, FL Melissa Alsina, MD  View Slides
May 4, 2019 Cambridge, MA Irene Ghobrial, MD
Paul Richardson, MD
View Slides
May 4, 2019 Cambridge, MA Speakers:
Introduction – Dr. Richardson
State of Myeloma – Dr. Anderson
Newly Diagnosed MM (breakout) – Dr. Krishnan
RRMM (breakout) – Dr. Larsen
Caregiver (breakout) – Kathy Colson
Patient presentation – Allan and Deb Osborne
Precision Medicine – Dr. Ghobrial
View Videos
May 18, 2019 Denver, CO Robert M. Rifkin, MD, FACP  View Slides
October 5, 2019 San Francisco, CA Tom Martin, MD
Jeffrey Wolf, MD
View Slides
November 2, 2019 Philadelphia, PA Edward Stadtmauer, MD
Adam D. Cohen, MD
View Slides
November 9, 2019 Toronto , Canada Donna Reece, MD
Suzanne Trudel, MD, MSC, FRCPC
View Slides