Patient Education Programs
The health and well-being of our patients is our top priority. Please note that concerns regarding Novel Coronavirus (COVID-19) may affect our events. We are monitoring the situation closely and will send out immediate communication to registered attendees if there are any changes in plans. Please click here for more information from our Chief Medical Officer Hearn Jay Cho MD, PhD about how to minimize your risk of contracting the virus.
Order MMRF Literature
Download or order a copy of the MMRF Patient Toolkit. It includes our managing Myeloma Resource Brochure, Multiple Myeloma Disease Overview, Multiple Myeloma Treatment Overview, Multiple Myeloma Caregiver Guide and Precision Medicine brochure. Multiple quantities are available.
Available to US addresses only. The MMRF cannot ship to addresses outside the USA.
Outside the US? Feel free to download the kit content below.
Download these booklets using the links below and make your own notes as you read through them. The more you learn about multiple myeloma and its treatments, the more empowered you will be in your multiple myeloma journey.
High impact topic videos, or HITs, are videos that use engaging animations and narration to present information on topics of importance to myeloma patients and their caregivers. Presented in a patient-friendly manner and viewable on iPads, tablets, and smartphones, these HITs bring to life and explain concepts that can sometimes be difficult for patients and caregivers to understand.
The MMRF wishes to thank the following reviewers and contributors to these HITs: Craig Emmitt Cole, MD; Ola Landgren, MD, PhD; Louise Miller Lavin, BSN, MSN, LPCC; Joshua Richter, MD; Nina Shah, MD. .
|MRD (Minimal residual disease)||Learn what MRD is, how it is measured, and what it might mean if your doctor tells you that you are MRD positive or MRD negative.|
|Immunotherapy||Understand how your immune system interacts with your myeloma, and how new immunotherapies are helping patients’ immune systems recognize and destroy myeloma cells.|
|Genomics||Hear how doctors can use genomic information from your myeloma cells to provide therapy that is tailored to your myeloma subtype.|
|Learn Your Labs||This video provides information on laboratory tests that myeloma patients may undergo. Learn about why and how the tests are done and what the results mean.|
To keep multiple myeloma patients informed on the latest updates during the COVID-19 pandemic, Drs. Hearn Jay Cho, Saad Z. Usmani, and Zainab Shahid are leading eight weekly 30-minute webcasts. Each webcast will focus on a specific topic and feature guest speakers to present important information and address questions and concerns regarding the COVID-19 pandemic.
Note: You only need to register once to be able to participate in any (or all!) of the eight webcasts.
- Basics of COVID-19 disease (testing, treatment, and trials)
- Preventative measures
- Impact on treatment for newly diagnosed myeloma patients (for example, transplant deferment)
- Impact on treatment for relapsed patients and clinical trial availability
- Supportive care measures for patients (including bone health, intravenous immunoglobulin therapy, vaccinations, and more)
- Social support, institutional, regional, and national foundations
- COVID-19 database and specimen collection efforts
- Personal perspectives on COVID-19 infection
Join us every Tuesday from June 2nd - July 21st at 6:00PM EDT
|Learn Your Labs||Tuesday, February 4, 2020 1:00PM ET||View Recording||View Slides|
|Supportive Care||Wednesday, March 4, 2020 1:00PM ET||View Recording||View Slides|
|Smoldering Myeloma||Thursday, April 23, 2020 1:00PM EDT||View Recording||View Slides|
|Managing Myeloma During the COVID-19 Pandemic||Wednesday, May 20, 2020 1:30PM – 2:30PM EDT||View Recording||View Slides|
|Multiple Myeloma Highlights From the 2020 American Society of Clinical Oncology (ASCO) Annual Meeting||Tuesday, June 16, 2020 1:00PM – 2:00PM EDT||Register|
2019 Patient Webinars
|Multiple Myeloma Patient Highlights: 2018 ASH Annual Meeting||Wed, Feb 6, 2019 1:00PM||View Recording||View Slides|
|Innovative Clinical Trials||Wednesday, March 6, 2019 1:00PM||View Recording||View Slides|
|Emerging Immunotherapy Treatments in Myeloma CAR T-Cell Therapy and BiTEs||Tuesday, April 2, 2019 1:00PM||View Recording||View Slides|
|MRD/Blood Biopsy||Wednesday, May 15, 2019 1:00PM ET||View Recording||View Slides|
|ASCO 2019 Highlights||Tuesday, June 18, 2019 1:00PM EDT||View Recording||View Slides|
|Vaccines and Monoclonal Antibodies||Wednesday, July 10, 2019 1:00PM ET||View Recording||View Slides|
|MMRF CoMMpass(sm) Study Updates||Wednesday, August 21, 2019 1:00PM EDT||View Recording||View Slides|
|Daily Updates from The International Myeloma Workshop||September 12, 13, 14, 2019||View Recordings|
|New Drug Approval: What Does the Arrival of XPOVIO (selinexor) Mean for Multiple Myeloma Patients?||Thursday, October 17, 2019 4:00PM EDT||View Recording||View Slides|
|Maintenance Therapy for Multiple Myeloma Patients: Understanding Treatment Options||Wednesday, November 20, 2019 3:00PM ET||View Recording||View Slides|
|Multiple Myeloma Highlights From the 2019 American Society of Hematology (ASH) Meeting & Exposition||Wednesday, December 18, 2019 1:00PM ET||View Recording||View Slides|
2019 African American Community Cancer Workshops
|September 19, 2019||5:45 PM - 8:30 PM EDT||Louisville, KY||Register|
|September 28, 2019||11:00 AM - 2:00 PM EDT||Washington, DC||Register|
|October 10, 2019||11:00 AM – 2:00 PM CDT||Chicago, IL||Register|
|October 19, 2019||11:00 AM – 2:00 PM CDT||Southaven, MS||Register|
|October 25, 2019||5:00 PM – 8:00 PM CDT||Dallas, TX||Register|
|November 9, 2019||11:00 AM – 2:00 PM CDT||Oakland, CA||Register|
|November 14, 2019||6:30 PM – 8:00 PM CDT||New Orleans, LA||Register|
|Date||Location of Event||Program Chair(s)|
|March 9, 2019||Tampa, FL||Melissa Alsina, MD||View Slides|
|May 4, 2019||Cambridge, MA||Irene Ghobrial, MD
Paul Richardson, MD
|May 4, 2019||Cambridge, MA||Speakers:
Introduction – Dr. Richardson
State of Myeloma – Dr. Anderson
Newly Diagnosed MM (breakout) – Dr. Krishnan
RRMM (breakout) – Dr. Larsen
Caregiver (breakout) – Kathy Colson
Patient presentation – Allan and Deb Osborne
Precision Medicine – Dr. Ghobrial
|May 18, 2019||Denver, CO||Robert M. Rifkin, MD, FACP||View Slides|
|October 5, 2019||San Francisco, CA||Tom Martin, MD
Jeffrey Wolf, MD
|November 2, 2019||Philadelphia, PA||Edward Stadtmauer, MD
Adam D. Cohen, MD
|November 9, 2019||Toronto , Canada||Donna Reece, MD
Suzanne Trudel, MD, MSC, FRCPC