CLEVELAND — With the Olympics now underway, we are having a competition of our own — the Winter Olympics Showdown for Charity. I will be raising money for a charity close to home, the Multiple Myeloma Research Foundation.
I’m doing it in honor of my mom.
For those of you who don’t know my mom, she’s a wife, mother of three boys, a grandma and a retired educator. On top of that, she’s a person living with Multiple Myeloma.
Despite tremendous progress against cancer in the past few decades, not all Americans have benefited equally from advances in research and treatment. The American Association for Cancer Research (AACR) is passionately committed to eliminating cancer health disparities, and has numerous initiatives devoted to this critical issue.
This week, two individuals who have played important roles in cancer research and advocacy teamed up to call for collective national action to narrow cancer health disparities. In an article published in The Hill, Kathy Giusti and John Carpten, PhD, FAACR, wrote that disparities could be addressed by several common-sense strategies, including diversifying clinical trials, making trials more streamlined and therefore more accessible, and enlisting support from industry and government stakeholders.
“The COVID vaccine’s development proved how much can be achieved when Congress, local government, industry, and academia work together. That same collective urgency and action should define the fight to close cancer gaps,” Giusti and Carpten wrote.
After being diagnosed with multiple myeloma, Kathy Giusti started the Multiple Myeloma Research Foundation (MMRF), a nonprofit organization, to help accelerate the search for a cure.
The MMRF CureCloud Research Initiative, a novel direct-to-patient observational study developed by the Multiple Myeloma Research Foundation (MMRF), collects and aggregates de-identified genomic and clinical data from thousands of patients, providing each participant with a personalized genomic report based on their disease subtype, with the ultimate goal to individualize and optimize their treatment.
In the process, the initiative will create a data set that can inform treatment decisions for all patients with multiple myeloma (MM), according to Anne Quinn Young, MPH, brand president, MMRF. Gathering, aggregating, and sharing the data will lead to “democratization of care,” which is especially important in MM because it disproportionately affects underserved groups, Young said in an interview.
The mission of the MMRF is to accelerate a cure for each and every multiple myeloma patient. Full stop. And in a disease that is uncommon and defined by its heterogeneity, it will require precision medicine solutions which can only be achieved with data – and lots of it. Fortunately, since its founding, the MMRF has worked at the speed of science anticipating what would come next and preparing to fuel research with critical baseline information.
The death of former Secretary of State Colin Powell on Monday from complications of Covid-19 has provided fuel for vaccine skeptics and…
The New York Times interviews the MMRF Founder Kathy Giusti about Former Secretary of State Colin Powell for an article on the effectiveness of COVID-19 vaccinations in patients with compromised immune systems.
The loss of a friend has driven an athlete to raise money and awareness for a great cause.
Eric Gelber, an endurance athlete, is attempting to row 200 miles on a stationary rowing machine in three days.
Anne Quinn Young, MPH, Brand President of the MMRF discusses CureCloud, their latest platform designed to provide myeloma patents with their own genomic profile while building a database that combines genomic insights with clinical data to identify trends and support further developments. The CureCloud mission is to find and develop cures for all myeloma patients based on the fact that all patients can contribute to cures and each patient can benefit from the masses.
Life is a series of Circles and cycles, phases, and stages. These are the experiences that teach you the lessons of life. You can either ignore them or EMBRACE them. MMRF Brand President Anne Quinn Young, MPH spoke with James Cooley from It’s Your Life, to discuss multiple myeloma and the mission of the MMRF. (It’s Your Life | Anne Quinn Young | 05.06.2021)
