It's easy to get involved in research or join a clinical trial through the MMRF and we will guide you through the process every step of the way.
If you’re a patient, sharing your data is the easiest and most effective way to contribute to the cure. Register with the MMRF to learn more about getting your genome sequenced so you can share your data.
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Find a clinical trial that is right for you. Your participation is key in helping push science forward.
Learn MoreMRD testing using the @AdaptiveBiotech clonoSEQ assay is now covered by Medicare for #myeloma patients! #mmsm
https://t.co/kHyaufPYX4
Huge congrats @IreneGhobrial! Well deserved!
The MMRF has made precision medicine a reality for multiple myeloma patients. We invite you to watch an inspiring video featuring some of our closest collaborators as we take the next leap toward a cure. Learn about our bold new plan: https://t.co/hE5EVO4twB #PrecisionMedicine
February 2, 2019
Mingle for MyelomaEVENTS DETAILSFebruary 6, 2019
Multiple Myeloma Patient Highlights: 2018 ASH Annual MeetingEVENTS DETAILSMay 7, 2019
Laugh For Life: New YorkEVENTS DETAILSOctober 17, 2019
Chicago Awards DinnerEVENTS DETAILSPrinted Materials: To opt out of receiving printed marketing materials at your postal address, such as advertisements, flyers or postcards, please write to us at the address below. Please be sure to include your name and mailing address exactly as they appear on the printed marketing materials you received.
Emails: To opt out of receiving marketing communications via email, please send an unsubscribe request to the email address below or click on the unsubscribe link at the bottom of the email that was sent to you and follow the directions on the resulting web page. Please note that you may continue to receive certain transactional or account-related electronic messages from us.
Text Messages: If you have consented to receive text messages, you may opt out of receiving them by using the method provided in the text message or by contacting us as set forth in the Contact Us section below.
Push Notifications: To opt out of receiving push notifications, please set your preferences within your device setting menu.
Any changes to these Disclosures will be effective upon the earlier of thirty (30) calendar days following our dispatch of an email notice to you or thirty (30) calendar days following our posting of notice of the changes on the Website. These changes will be effective immediately for new users of our Website.
Please note that at all times you are responsible for updating your Personal Data to provide us with your most current email address. In the event that the last email address that you have provided us is not valid, or for any reason is not capable of delivering to you the notice described above, our dispatch of the email containing such notice will nonetheless constitute effective notice of the changes described in the notice.
If you do not wish to permit changes in our use of your Personal Data, you must so notify us prior to the effective date of the changes and discontinue using the Website. Continued use of our Website, following notice of such changes shall indicate your acknowledgement of such changes and agreement to be bound by the terms and conditions of such changes.
Some of our Website may enable users to submit their own content for contests, blogs, videos, and other functions. Please remember that any data you submit or post as user-generated content to the Website become public data. You should exercise caution when deciding to disclose your personal, financial or other data in such submissions or posts. We cannot prevent others from using such data in a manner that may violate these Disclosures, the law, or your personal privacy and safety. We are not responsible for the results of such postings.
To submit a request, please contact us as set forth in the Contact Us section below. We will respond to your request within a reasonable time frame.
You also have the right to withdraw your consent to our processing of your Personal Data, when our processing is solely based on your consent. You can do this by discontinuing use of the Website, including by closing all of your online accounts with us and contacting us as set forth in the Contact Us section below to request that your Personal Data be deleted. If you withdraw your consent to the use or sharing of your Personal Data for the purposes set out in these Disclosures, you may not have access to all (or any) of the Website, and we might not be able to provide you all (or any) of the Website. Please note that, in certain cases, we may continue to process your Personal Data after you have withdrawn consent and requested that we delete your Personal Data, if we have a legal basis to do so. For example, we may retain certain information if we need to do so to comply with an independent legal obligation, or if it is necessary to do so to pursue our legitimate interest in keeping the Website safe and secure.
If you have any complaints regarding our privacy practices, you have the right to lodge a complaint with your national data protection authority (i.e., supervisory authority).
Adequacy Decision: We may transfer your Personal Data to Switzerland and other countries which the European Commission has approved as providing adequate protection to personal data. A list of these countries can be found here:
Standard Contractual Clauses: The European Commission has adopted standard data protection clauses, which provide safeguards for personal data transferred outside of the EEA. We sometimes use Standard Contractual Clauses when transferring Personal Data from a country in the EEA to a country outside the EEA. You can request a copy of our Standard Contractual Clauses by contacting us as set forth in the Contact Us section below.
With your consent: In respect of certain cross-border personal data transfers, such as in research studies that you provide consent to enter, we will obtain your consent to transfer your Personal Data outside the EEA after first informing you about the possible risks of such a transfer.
By contract: We will transfer your Personal Data outside the EEA if the transfer is necessary to the performance of a contract between you and MMRF, or if the transfer is necessary to the performance of a contract between MMRF and a third party, and the contract was entered into in your interest.
In addition, we may transfer your Personal Data outside the EEA if the transfer is necessary to establish, exercise or defend legal claims or to protect your vital interests.
Service Providers: We share your Personal Data with third-party service providers who complete transactions or perform services on our behalf or for your benefit, such as for payment processing, marketing, analytics, processing employment applications and performing human resources administration or to verify customer data, such as mailing addresses.
Affiliates: We may share your Personal Data with affiliated legal entities within our family of companies for purposes and uses that are consistent with these Disclosures.
Business Partners: We may share your Personal Data with our business partners for the purpose of administering programs and services, such as Rallybound, if you elect to make an online donation
Third-Party Mobile App Providers: With your knowledge and consent, the Website may gather and transfer your Personal Data, including location information, from and to other applications, functions and tools within your mobile device.
Social Media Platforms: We may also use services provided by third parties (such as social media platforms) to serve targeted ads to you on third party platforms. We may do this by providing a hashed version of your Personal Data to the third party for matching purposes. Please review Your Ad Choices below for more information, including how to opt-out of interest-based advertising.
Legal Process, Safety and Terms Enforcement: We may disclose your Personal Data to legal or government regulatory authorities as required by applicable law. We may also disclose your Personal Data to third parties as required by applicable law in connection with claims, disputes or litigation, when otherwise required by applicable law, or if we determine its disclosure is necessary to protect the health and safety of you or us, or to enforce our legal rights or contractual commitments that you have made.
Business Transfers: Your Personal Data may be disclosed as part of a corporate business transaction, such as a merger, acquisition, joint venture, or financing or sale of company assets, and could be transferred to a third party as one of the business assets in such a transaction. It may also be disclosed in the event of insolvency, bankruptcy or receivership. You will be notified via email and/or a prominent notice on any affected Website of any change in ownership or uses of Personal Data, as well as your choices regarding Personal Data about you.
Information You Provide
We collect Personal Data you provide, for example when you enter the data into form fields on our Website. For example, we may collect:
| Category of Personal Data | Purposes of Processing (see also Additional Uses of Personal Data below) |
Legal Bases for Processing |
| Contact Information
name (individual and/or organization/company), physical address, telephone number, email address, and other electronic contact information (such as Twitter, Facebook, Tumblr, and Myspace accounts) |
To administer your account and the Website, authenticate you as a user, and communicate with you
To help you find a research study as a research subject To notify you of events that may be of interest to you and to provide you with event resources |
To process transactions requested by you and meet our contractual obligations
Legitimate interests Your consent, when applicable |
| Demographic Information
including your age, occupation/employer information, donation information/history, educational history and participation at MMRF events |
To notify you of events that may be of interest to you, to target and deliver relevant offers and ads, to support our operations, and to improve our products and services including the Website
To register you for professional education |
Legitimate interests
Your consent, when applicable |
| Payment Information
including credit card number (and expiration date), billing information (such as individual/company name, physical address, telephone number) |
To process donations and investments that you make online. For more information regarding our privacy practices related to donors, please see our Donor Privacy Policy
To improve our donations and investments platforms, to personalize your customer experience and to contribute to our marketing efforts, for example, by analyzing information about what products are viewed, when you browse items but do not make a donation or investment. |
To process transactions requested by you and meet our contractual obligations
Legitimate interests Compliance with legal obligations Your consent, when applicable |
| Health Status of you and your Family
including your interest in participation in studies related to multiple myeloma |
To help you identify research studies that may be of interest to you
To help identify treatments and resources that may be able to assist you To connect you with advice from nurses] To help you identify treatment centers |
Your explicit consent, when applicable |
| Investment Interests
Including your interest in investing in potential treatments |
To identify your interests in investing in research carried about by MMRF | Legitimate interests |
MRD testing using the @AdaptiveBiotech clonoSEQ assay is now covered by Medicare for #myeloma patients! #mmsm
https://t.co/kHyaufPYX4
Huge congrats @IreneGhobrial! Well deserved!
The MMRF has made precision medicine a reality for multiple myeloma patients. We invite you to watch an inspiring video featuring some of our closest collaborators as we take the next leap toward a cure. Learn about our bold new plan: https://t.co/hE5EVO4twB #PrecisionMedicine
