Privacy Policy | The MMRF

The Multiple Myeloma Research Foundation, Inc. (“MMRF,” “we,” “our,” and/or “us”) respects your privacy interests and is committed to honoring your preferences. This privacy policy (“Privacy Policy”) describes the types of information we may collect from you or that you may provide to us as visitors and/or users of our website http://themmrf.org/ (our “Website”), the Patient Navigator, and related MMRF services (collectively, our “Services”) and in all aspects of our operations, as well as our practices for collecting, using, protecting and disclosing that information. MMRF is the sole owner of any information collected on our Services. This Privacy Policy applies to information we collect from or about you, our users, when you:

Use mobile and desktop applications you download from our Services.

Access or interact with our Website or Services in order to obtain MMRF online services.

Interact with MMRF advertising on third-party websites.

Please read this Privacy Policy carefully to understand our policies and practices regarding your information and how we will treat it. If you do not agree with our policies and practices, please do not use our Services or interact with us. By accessing, using, or otherwise interacting with our Services, you agree to our collection, use, disclosure, and implementation of the procedures this Privacy Policy describes. Beyond the Privacy Policy, your use of our Services is also subject to our Terms of Use.

This Privacy Policy may change from time to time. Your continued use of our Services after we make changes is deemed to be acceptance of those changes, so please check this Privacy Policy periodically for updates.

If you are a resident of the European Economic Area (“EEA”), please review our MMRF EEA Privacy Policy.

Information We Collect About You and How We Collect It

We collect several types of information from and about users of our Services, including information:

By which you may be personally identified, such as name, postal address, email address, telephone number, fax number and credit card information.

About your internet connection, the equipment you use to access our Services and usage details when accessing our Services.

A. Information You Provide to Us

Registration Information. When you create an account, fill out forms on our Services, register to use our Services, subscribe to our newsletter for notifications or updates, sign up for webinars or events, participate in our surveys, post material to our Services or update your preferences, we may ask you for your name, state or mailing address, email address, phone number, social media (such as Facebook, Twitter, or LinkedIn accounts), and your connection to myeloma.

Communications. If you contact us directly, we may receive additional information about you from records and copies of your correspondence. For example, if you contact us with a question or to report a problem with our Services, we will receive your name, email address, phone number, and the contents of any message or attachments that you may send to us, and any other information you choose to provide. If you subscribe to our newsletter, we will collect certain information from you, such as your email address. When we send you emails, we may track whether you open them to learn how to deliver a better user experience and improve our Services.

Survey Responses. If you choose to participate in our surveys, we will collect your responses to survey questions for research purposes.

Clinical Trial Finder. If you choose to use our clinical trial finder, we will collect the demographic, location, and health related information you may choose to provide such as zip code, age, gender, multiple myeloma patient status, in order to help you identify a potential clinical trial.

Health Information. If you choose to disclose your personal health information with MMRF through our Services, such as by contacting a Patient Navigator and explaining your Multiple Myeloma medical concerns, we will collect any health information you choose to provide us.

Payment Information. If you make a purchase or give a donation, we will receive the details of transactions you carry out through our Services for the fulfillment of your orders or requests. You may be required to provide financial information before placing an order through our Services.

User Contributions. You also may provide information to be published or displayed (hereinafter, “posted”) on public areas of the Services, or transmitted to other users of the Services or third parties (collectively, “User Contributions”). Your User Contributions are posted on and transmitted to others at your own risk.

Careers. If you decide to apply for a job with us, you may submit your contact information and your resume online. We will collect the information you choose to provide on your resume, such as your education and employment experience. You may also apply through LinkedIn or other career services sites. If you do so, we will collect the information you make available to us from those services.

B. Information We Collect When You Use Our Services

As you navigate through and interact with our Services, we may automatically receive certain information about your equipment, browsing actions and patterns, including:

Usage Information. To help us understand how you use our Services and to help us improve it, we automatically receive information about your visits to our Services, including the pages or other content you view, the searches you conduct, purchases you make, your comments, any content you post, traffic data, location data, logs and other communication data and the resources that you access and use on our Services, and the dates and times of your visits.

Device Information. We receive information about the device, software and internet connection you use to access our Services, including your IP address, operating system and web browser type.

The information we collect automatically is statistical data that helps us to improve our Services and to deliver a better and more personalized service by enabling us to:

Estimate our audience size and usage patterns.

Store information about your preferences, allowing us to customize our Services according to your individual interests.

Speed up your searches.

Recognize you when you return to our Services.

Information from Cookies and Similar Technologies

What are cookies?

A cookie is a small file placed on the hard drive of your computer. You may refuse to accept browser cookies by activating the appropriate setting on your browser. However, if you select this setting, you may be unable to access certain parts of our Services. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issue cookies when you direct your browser to our Website. There are several types of cookies:

Session cookies expire at the end of your browser session and allow us to link your actions during that particular browser session.

Persistent cookies are stored on your device between browser sessions, allowing us to remember your preferences or actions across multiple sites.

First-party cookies are set by the site you are visiting.

Third-party cookies are set by a third-party site separate from the site you are visiting.

Why do we use cookies and other tracking technologies?

We use first party and third-party cookies for several reasons. Some cookies are required for technical reasons in order for our Services to operate, and we refer to these as “essential” or “strictly necessary” cookies. Other cookies enable us and the third parties we work with to track and target the interests of visitors to our Services, and we refer to these as “performance” or “functionality” cookies. For example, we use cookies to tailor content and information that we may send or display to you and otherwise personalize your experience while interacting with our Services and to otherwise improve the functionality of the Services we provide. Finally, third parties may serve cookies through our Services for advertising, analytics, and other purposes. This is described in more detail below.

Cookies

The specific types of first-and-third-party cookies served and the purposes they perform are described in further detail below:

Essential Cookies
These cookies are strictly necessary to provide you with Services available through our Website and to use some of their features, such as access to secure areas. Because these cookies are strictly necessary to deliver the Services, you cannot refuse them without impacting how our Services function.

Performance and Functionality Cookies
These cookies are used to enhance the performance and functionality of our Services but are non-essential to their use. However, without these cookies, certain functionality may become unavailable.

Analytics and Customization Cookies
These cookies collect information that is used to help us understand how our Services are being used, how effective our marketing campaigns are, or to help us customize our Services for you in order to enhance your experience.

Advertising (Targeting) Cookies
These cookies are used to make advertising messages more relevant to you and your interests. They also perform functions like preventing the same ad from continuously reappearing, ensuring that ads are properly displayed, and in some cases selecting advertisements that are based on your interests. [For more information, see the Targeted Online Advertising section below.]

Other Tracking Technologies

We and our third-party partners may use other, similar technologies from time to time, like web beacons, pixels (or “clear gifs”) and other tracking technologies. These are tiny graphics files that contain a unique identifier that enable us to recognize when someone has visited our Services, or in the case of web beacons, opened an email that we have sent them. This allows us, for example, to monitor the traffic patterns of users from one page within our Services to another, to deliver or communicate with cookies, to understand whether you have reached our Services from an online advertisement displayed on a third-party website, to serve targeted advertisements to you and others like you, to improve site performance, and to measure the success of marketing campaigns. While you may not have the ability to specifically reject or disable these tracking technologies, in many instances, these technologies are reliant on cookies to function properly; accordingly, in those instances, declining cookies will impair functioning of these technologies.

Targeted Online Advertising

We work with a variety of advertisers, advertising networks, advertising servers, and analytics companies (“Ad Partners”) that use technologies to collect data about your use of our Services (such as pages visited, ads viewed or clicked on) as well as your IP address, device identifier or mobile advertising identifier, in order to deliver relevant advertising.

These technologies may include the placement on our Services of cookies or web beacons, and other tracking technologies (as described in the Data We Automatically Collect section of our Privacy Notice) by these Ad Partners to track how our Services are being used, to track where users go and what they do after they leave our Services, and to link various devices you may use, and to serve you more relevant ads. These advertisements may appear on our Services or other services that you visit.

In addition, our Ad Partners use the information collected by the technologies on our Services (a) in conjunction with advertising that appears on our website or other websites, (b) to report website traffic, statistics, advertisement data and other interaction with ads and the websites on which they are served, and (c) to measure the effectiveness of web-based and email ads. Please note that our Privacy Notice and Cookie Policy do not cover the practices of our Ad Partners.

For more information about how Ad Partners use the information collected by the technologies on our Services and your options to opt out of such collection, please visit https://www.aboutads.info/choices/. You may also opt out of additional third-party advertising networks by going to the Network Advertising Initiative’s website and following the directions.

The opt-outs described above are device- and browser-specific and may not work on all devices. If you choose to opt-out through any of these opt-out tools, this does not mean you will cease to see advertising. Rather, the ads you see will just not be based on your interests.

How Can You Control Cookies and Similar Technologies?

Browser Controls. Most web browsers allow some control of most cookies through the browser settings. For more information about how to reject, disable or delete cookies, please review your browser’s help menu or visit www.aboutcookies.org or www.allaboutcookies.org. If you choose to reject cookies, you may not be able to take advantage of certain features, services, applications or tools available through the Services that are only available through the use of these technologies.

Disabling Most Targeted Online Advertising: As discussed above, advertising networks offer you a way to opt out of targeted online advertising. If you would like to find out more information, please visit https://www.youronlinechoices.com. You can opt out of having your mobile advertising identifiers used for certain types of targeted online advertising, including those performed by us, by accessing the settings in your mobile device and following the instructions.

Do Not Track. Some Internet browsers, such as Internet Explorer, Firefox, and Safari, include the ability to transmit “Do Not Track” or “DNT” signals. Since uniform standards for “DNT” signals have not been adopted, our Services do not currently process or respond to “DNT” signals. We take privacy and meaningful choice seriously and will make efforts to continue to monitor developments around DNT browser technology and the implementation of a standard. To learn more about “DNT”, please visit All About Do Not Track.

C. Information We Receive From Third Parties

Information from third-party services. If you choose to link our Services to a third-party account, such as Facebook, Twitter, LinkedIn, or Google, we may receive information about you, including your profile information and your photo, and your use of the third-party account. If you wish to limit the information available to us, you should visit the privacy settings of your third-party accounts to learn about your options.

Background Checks. We work with third-party partners to perform background checks on job applicants and receive publicly available information such as criminal history.

Research Studies. We receive information from investigative sites, contract research organizations (“CROs”) and other parties that participate in research studies. When you enroll in a research study that we sponsor or conduct, you will typically be provided with a consent form that contains notice provisions regarding the uses of your personal data. Please refer to the consent form that you sign when enrolling in one of our research studies to understand how information pertaining to you was collected in the study and processed.

Business Partners and Service Providers. We use business partners and service providers, such as payment processors and analytics providers, to perform services on our behalf. Some of these partners have access to information about you that we may not otherwise have (for example, when you sign up directly with that provider) and may share some or all this data with us. We use this data to administer the Services and conduct marketing and advertising campaigns as well as to process transactions that you request.

Supplemental Information. We may receive additional information about you from third-party sources, such as credit reference agencies and public databases, which we may append to existing consumer data, such as email address verification. We may use this supplemental information to process transactions that you request and to prevent fraud, deliver relevant offers and advertising to you and to improve our operations, Services and our advertising and marketing campaigns.

How We Use the Information We Collect

We use the information we collect from or about you, including any personal information:

To provide, maintain, improve, and enhance our Services;

To personalize your experience on our Services, such as by providing tailored content and recommendations;

To understand and analyze how you use our Services and develop new products, services, features, and functionality;

To provide you with information, products or services that you request from us;

To carry out our obligations and enforce our rights arising from any contracts entered into between you and us, including for billing and collection;

To respond to your inquiries and requests for information;

To fulfill a request by you for an online newsletter;

To communicate with you about our programs and Services;

In any other way we may describe when you provide the information;

To allow you to participate in interactive features on our Services;

For fundraising, marketing and advertising purposes, such as developing and providing promotional and advertising materials or events;

To generate anonymized, aggregate data containing only de-identified, non-personal information that we may use to publish reports;

To facilitate transactions, donations, and payments;

To send you text messages and push notifications;

To find and prevent fraud, and respond to trust and safety issues that may arise;

For compliance purposes, including enforcing our Terms of Use or other legal rights, or as may be required by applicable laws and regulations or requested by any judicial process or governmental agency; and

For any other purposes with your consent.

How We Share the Information We Collect

We may share or otherwise disclose information that we collect from or about you as described in this Privacy Policy:

Affiliates. We may share any information we receive with our subsidiaries and affiliates for any of the purposes described in this Privacy Policy.

Vendors and Service Providers. We may share any information we receive with contractors, vendors, service providers and other third parties we use to support our Services or services.

Marketing. We do not rent, sell, or share information about you with nonaffiliated companies for their direct marketing purposes, unless we have your permission.

Ad Partners. We work with our third-party Ad Partners in order to deliver relevant advertising (as described in the Targeted Online Advertising section above).

Analytics Partners. We use analytics services, such as Google Tag Manager, to collect and process certain analytics data. These services may also collect information about your use of other websites, apps, and online resources. You can learn more about Google’s practices by visiting https://www.google.com/policies/privacy/partners/. To help us understand how you use our Services and to help us improve them, we automatically receive information about your interactions with our Services, like the pages or other content you view, the searches you conduct, transactions you make, any content you post, and the dates and times of your visits.

Merger, Sale, or Other Asset Transfer. We may transfer your information to service providers, advisors, potential transactional partners, or other third parties in connection with the consideration, negotiation, or completion of a corporate transaction in which we are acquired by or merged with another company, or we sell, liquidate, or transfer all or a portion of our assets. The use of your information following any of these events will be governed by the provisions of this Privacy Policy in effect at the time applicable information was collected.

As Required By Law and Similar Disclosures. We may also access, preserve, and disclose your information if we believe doing so is required or appropriate to: (a) comply with any court order, law, or legal process, including to respond to any government or regulatory request; (b) respond to your requests; or (c) protect your, our, or others’ rights, property, or safety. For the avoidance of doubt, the disclosure of your information may occur if you post any objectionable content on or through our Services.

Consent. We may also disclose your information with your permission.

For any other purpose disclosed by us when you provide the information.

Data Security

We make reasonable efforts to protect your information and have implemented various security measures designed to protect your personal information. We maintain physical, administrative, and technical safeguards to help prevent the impermissible use of and unauthorized access to personal information. Such technological measures include but are not limited to: (i) storage of the personal information provided by users of the Website and Services in a secure database accessible only to authorized personnel through a double password protected system, (ii) strong logical access controls for both users and administrators of such database, (iii) encryption of personal information in-transit, and (iv) periodic backups of provided personal information. Credit Card information is never stored by MMRF, but is instead managed and stored by our vendor, Classy, Inc. (“Classy”), using encryption and other appropriate security measures. You may review the Classy website privacy policy to learn more about Classy’s privacy and security practices at https://www.classy.org/terms/privacy/. The safety and security of your information also depends on you. Where we have given you (or where you have chosen) a password for access to certain parts of our Website or Services, you are responsible for keeping this password confidential. We ask you not to share your password with anyone. Unfortunately, as no storage or transmission of information via the internet can be entirely secure, we cannot guarantee the security or privacy of your information. Although we do our best to protect your personal information, we cannot guarantee the security of your personal information transmitted to our Website or Services. Any transmission of information is at your own risk.

We are not responsible for circumvention of any privacy settings or security measures contained on the Website.

International Visitors

Our Services are hosted in the United States. If you choose to use our Services from the European Economic Area, the United Kingdom, or other regions of the world with laws governing data collection and use that may differ from US law, then please note we may transfer your personal information outside of those regions to the United States for storage and processing. Also, we may transfer your data from the US to other countries or regions in connection with storage and processing of data, fulfilling your requests, and operating the Services. By providing any information, including personal information, on or to the Services, you consent to such transfer, storage, and processing.

Country-/Region-Specific Disclosures

The laws of certain countries and regions require specific information to be included in a privacy notice. Please click below to review country-/region-specific information applicable to you.

If you are a resident of the European Economic Area or the United Kingdom, please review our EEA Privacy Policy and our EEA Cookie Policy.

Additional Policies

Certain websites, mobile applications or other digital properties included in the Services may contain additional disclosures related to your privacy. For example, if you choose to submit a testimonial through one of our websites, the content of your submission will be used according to the terms set out on the submission webpage, as well as in the ways described in the Privacy Policy.

Children’s Privacy

Our Services are not intended for children under 13 years of age. No one under age 13 may provide any personal information to or on our Services. We do not knowingly collect personal information from children under 13. If you are under 13, do not use or provide any information on this Services or on or through any of its features/register on the Services, make any purchases through the Services, use any of the interactive or public comment features of this Services or provide any information about yourself to us, including your name, address, telephone number, email address or any screen name or user name you may use. If we learn we have collected or received personal information from a child under 13, without verification of parental consent, we will delete that information. If you believe we might have any information from or about a child under 13, please contact us using the Contact Us form below.

User Contributions

Some of our Online Platforms enable users to submit their own content for testimonials, contests, blogs, videos, and other functions. Please remember that any information you submit or post as user-generated content to our Online Platforms may become public information. You should exercise caution in such submissions or posts. We cannot prevent others from using such data in a manner that may violate this Privacy Policy, the law, or your personal privacy and safety. We are not responsible for the results of such postings.

Links to Third-Party Sites

Our Services may contain links to other websites, products, or services that we do not own or operate. We are not responsible for the privacy practices of these third parties. Please be aware that this Privacy Policy does not apply to your activities on these third-party services or any information you disclose to these third parties. We encourage you to read their privacy policies before providing any information to them.

Updates to the Privacy Policy

We will post any adjustments to this Privacy Policy on this page, and the revised version will be effective when it is posted. You can determine when this Privacy Policy was last revised by checking the Last Updated date at the start of the Privacy Policy.

Managing Communication Preferences

If you have opted-in to our marketing communications (or where permitted by law, if you have provided us or we have obtained your contact information), we may send you email messages, direct mail offers, or other communications regarding products or services depending on the method of communication selected. At any time, you may elect to discontinue receiving commercial messages from us by submitting an opt-out request to the contact information below or by following the unsubscribe instructions in the form of the communication you received, as described below. Even if you opt out of receiving promotional messages from us, you will continue to receive administrative messages from us.

Printed Materials: To opt out of receiving printed marketing materials at your postal address, such as advertisements, flyers, or postcards, please write to us at the address set forth in the Contact Us section below. Please be sure to include your name and mailing address exactly as they appear on the printed marketing materials you received.

Emails: To opt out of receiving marketing communications via email, please send an unsubscribe request to the email address set forth in the Contact Us section below or click on the unsubscribe link at the bottom of the email that was sent to you and follow the directions on the resulting web page. Please note that you may continue to receive certain transactional electronic messages from us.

Text Messages: If you have consented to receive text messages, you may opt out of receiving them by using the method provided in the text message or by contacting us as set forth in the Contact Us section below.

Push Notifications: To opt out of receiving push notifications, please set your preferences within your device setting menu.

Update Your Information or Pose a Question

You can update your account and profile information or close your account through your MMRF account settings. If you have questions about your privacy on the Services or this privacy policy, please contact us as set forth in the Contact Us section below.

Contact Us

If you have any questions, comments, requests or concerns about this Privacy Policy or other privacy-related matters, please email us using the Contact Us section below or write to us at:

Multiple Myeloma Research Foundation (MMRF)
383 Main Avenue, 5th Floor,
Norwalk, CT 06851.

For instructions on how you can access the personally identifiable information that MMRF has collected about you online, or how to correct factual errors in such information, please send an email, along with your first and last name, using the Contact Us section below.