The Multiple Myeloma Research Foundation, Inc. (“MMRF,” “we,” “our,” and/or “us”) respects your privacy interests and is committed to honoring your preferences. This privacy policy (“Privacy Policy”) describes the types of information we may collect from you or that you may provide to us as visitors and/or users of our website https://themmrf.org/ (our “Website”), the Patient Navigator, and related MMRF services (collectively, our “Services”) and in all aspects of our operations, as well as our practices for collecting, using, protecting and disclosing that information. MMRF is the sole owner of any information collected on our Services. This Privacy Policy applies to information we collect from or about you, our users, when you:
Please read this Privacy Policy carefully to understand our policies and practices regarding your information and how we will treat it. If you do not agree with our policies and practices, please do not use our Services or interact with us. By accessing, using, or otherwise interacting with our Services, you agree to our collection, use, disclosure, and implementation of the procedures this Privacy Policy describes. Beyond the Privacy Policy, your use of our Services is also subject to our Terms of Use.
This Privacy Policy may change from time to time. Your continued use of our Services after we make changes is deemed to be acceptance of those changes, so please check this Privacy Policy periodically for updates.
If you are a resident of the European Economic Area (“EEA”), please review our MMRF EEA Privacy Policy.
We collect several types of information from and about users of our Services, including information:
By which you may be personally identified, such as name, postal address, email address, telephone number, fax number and credit card information.
About your internet connection, the equipment you use to access our Services and usage details when accessing our Services.
As you navigate through and interact with our Services, we may automatically receive certain information about your equipment, browsing actions and patterns, including:
Usage Information. To help us understand how you use our Services and to help us improve it, we automatically receive information about your visits to our Services, including the pages or other content you view, the searches you conduct, purchases you make, your comments, any content you post, traffic data, location data, logs and other communication data and the resources that you access and use on our Services, and the dates and times of your visits.
Device Information. We receive information about the device, software and internet connection you use to access our Services, including your IP address, operating system and web browser type.
The information we collect automatically is statistical data that helps us to improve our Services and to deliver a better and more personalized service by enabling us to:
What are cookies?
A cookie is a small file placed on the hard drive of your computer. You may refuse to accept browser cookies by activating the appropriate setting on your browser. However, if you select this setting, you may be unable to access certain parts of our Services. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issue cookies when you direct your browser to our Website. There are several types of cookies:
We use first party and third-party cookies for several reasons. Some cookies are required for technical reasons in order for our Services to operate, and we refer to these as “essential” or “strictly necessary” cookies. Other cookies enable us and the third parties we work with to track and target the interests of visitors to our Services, and we refer to these as “performance” or “functionality” cookies. For example, we use cookies to tailor content and information that we may send or display to you and otherwise personalize your experience while interacting with our Services and to otherwise improve the functionality of the Services we provide. Finally, third parties may serve cookies through our Services for advertising, analytics, and other purposes. This is described in more detail below.
The specific types of first-and-third-party cookies served and the purposes they perform are described in further detail below:
Essential Cookies
These cookies are strictly necessary to provide you with Services available through our Website and to use some of their features, such as access to secure areas. Because these cookies are strictly necessary to deliver the Services, you cannot refuse them without impacting how our Services function.
Performance and Functionality Cookies
These cookies are used to enhance the performance and functionality of our Services but are non-essential to their use. However, without these cookies, certain functionality may become unavailable.
Analytics and Customization Cookies
These cookies collect information that is used to help us understand how our Services are being used, how effective our marketing campaigns are, or to help us customize our Services for you in order to enhance your experience.
Advertising (Targeting) Cookies
These cookies are used to make advertising messages more relevant to you and your interests. They also perform functions like preventing the same ad from continuously reappearing, ensuring that ads are properly displayed, and in some cases selecting advertisements that are based on your interests. [For more information, see the Targeted Online Advertising section below.]
We and our third-party partners may use other, similar technologies from time to time, like web beacons, pixels (or “clear gifs”) and other tracking technologies. These are tiny graphics files that contain a unique identifier that enable us to recognize when someone has visited our Services, or in the case of web beacons, opened an email that we have sent them. This allows us, for example, to monitor the traffic patterns of users from one page within our Services to another, to deliver or communicate with cookies, to understand whether you have reached our Services from an online advertisement displayed on a third-party website, to serve targeted advertisements to you and others like you, to improve site performance, and to measure the success of marketing campaigns. While you may not have the ability to specifically reject or disable these tracking technologies, in many instances, these technologies are reliant on cookies to function properly; accordingly, in those instances, declining cookies will impair functioning of these technologies.
We work with a variety of advertisers, advertising networks, advertising servers, and analytics companies (“Ad Partners”) that use technologies to collect data about your use of our Services (such as pages visited, ads viewed or clicked on) as well as your IP address, device identifier or mobile advertising identifier, in order to deliver relevant advertising.
These technologies may include the placement on our Services of cookies or web beacons, and other tracking technologies (as described in the Data We Automatically Collect section of our Privacy Notice) by these Ad Partners to track how our Services are being used, to track where users go and what they do after they leave our Services, and to link various devices you may use, and to serve you more relevant ads. These advertisements may appear on our Services or other services that you visit.
In addition, our Ad Partners use the information collected by the technologies on our Services (a) in conjunction with advertising that appears on our website or other websites, (b) to report website traffic, statistics, advertisement data and other interaction with ads and the websites on which they are served, and (c) to measure the effectiveness of web-based and email ads. Please note that our Privacy Notice and Cookie Policy do not cover the practices of our Ad Partners.
For more information about how Ad Partners use the information collected by the technologies on our Services and your options to opt out of such collection, please visit https://www.aboutads.info/choices/. You may also opt out of additional third-party advertising networks by going to the Network Advertising Initiative’s website and following the directions.
The opt-outs described above are device- and browser-specific and may not work on all devices. If you choose to opt-out through any of these opt-out tools, this does not mean you will cease to see advertising. Rather, the ads you see will just not be based on your interests.
Browser Controls. Most web browsers allow some control of most cookies through the browser settings. For more information about how to reject, disable or delete cookies, please review your browser’s help menu or visit www.aboutcookies.org or www.allaboutcookies.org. If you choose to reject cookies, you may not be able to take advantage of certain features, services, applications or tools available through the Services that are only available through the use of these technologies.
Disabling Most Targeted Online Advertising: As discussed above, advertising networks offer you a way to opt out of targeted online advertising. If you would like to find out more information, please visit https://www.youronlinechoices.com. You can opt out of having your mobile advertising identifiers used for certain types of targeted online advertising, including those performed by us, by accessing the settings in your mobile device and following the instructions.
Do Not Track. Some Internet browsers, such as Internet Explorer, Firefox, and Safari, include the ability to transmit “Do Not Track” or “DNT” signals. Since uniform standards for “DNT” signals have not been adopted, our Services do not currently process or respond to “DNT” signals. We take privacy and meaningful choice seriously and will make efforts to continue to monitor developments around DNT browser technology and the implementation of a standard. To learn more about “DNT”, please visit All About Do Not Track.
Information from third-party services. If you choose to link our Services to a third-party account, such as Facebook, Twitter, LinkedIn, or Google, we may receive information about you, including your profile information and your photo, and your use of the third-party account. If you wish to limit the information available to us, you should visit the privacy settings of your third-party accounts to learn about your options.
Background Checks. We work with third-party partners to perform background checks on job applicants and receive publicly available information such as criminal history.
Research Studies. We receive information from investigative sites, contract research organizations (“CROs”) and other parties that participate in research studies. When you enroll in a research study that we sponsor or conduct, you will typically be provided with a consent form that contains notice provisions regarding the uses of your personal data. Please refer to the consent form that you sign when enrolling in one of our research studies to understand how information pertaining to you was collected in the study and processed.
Business Partners and Service Providers. We use business partners and service providers, such as payment processors and analytics providers, to perform services on our behalf. Some of these partners have access to information about you that we may not otherwise have (for example, when you sign up directly with that provider) and may share some or all this data with us. We use this data to administer the Services and conduct marketing and advertising campaigns as well as to process transactions that you request.
Supplemental Information. We may receive additional information about you from third-party sources, such as credit reference agencies and public databases, which we may append to existing consumer data, such as email address verification. We may use this supplemental information to process transactions that you request and to prevent fraud, deliver relevant offers and advertising to you and to improve our operations, Services and our advertising and marketing campaigns.
We use the information we collect from or about you, including any personal information:
We may share or otherwise disclose information that we collect from or about you as described in this Privacy Policy:
We make reasonable efforts to protect your information and have implemented various security measures designed to protect your personal information. We maintain physical, administrative, and technical safeguards to help prevent the impermissible use of and unauthorized access to personal information. Such technological measures include but are not limited to: (i) storage of the personal information provided by users of the Website and Services in a secure database accessible only to authorized personnel through a double password protected system, (ii) strong logical access controls for both users and administrators of such database, (iii) encryption of personal information in-transit, and (iv) periodic backups of provided personal information. Credit Card information is never stored by MMRF, but is instead managed and stored by our vendor, Classy, Inc. (“Classy”), using encryption and other appropriate security measures. You may review the Classy website privacy policy to learn more about Classy’s privacy and security practices at https://www.classy.org/terms/privacy/. The safety and security of your information also depends on you. Where we have given you (or where you have chosen) a password for access to certain parts of our Website or Services, you are responsible for keeping this password confidential. We ask you not to share your password with anyone. Unfortunately, as no storage or transmission of information via the internet can be entirely secure, we cannot guarantee the security or privacy of your information. Although we do our best to protect your personal information, we cannot guarantee the security of your personal information transmitted to our Website or Services. Any transmission of information is at your own risk.
We are not responsible for circumvention of any privacy settings or security measures contained on the Website.
Our Services are hosted in the United States. If you choose to use our Services from the European Economic Area, the United Kingdom, or other regions of the world with laws governing data collection and use that may differ from US law, then please note we may transfer your personal information outside of those regions to the United States for storage and processing. Also, we may transfer your data from the US to other countries or regions in connection with storage and processing of data, fulfilling your requests, and operating the Services. By providing any information, including personal information, on or to the Services, you consent to such transfer, storage, and processing.
Certain websites, mobile applications or other digital properties included in the Services may contain additional disclosures related to your privacy. For example, if you choose to submit a testimonial through one of our websites, the content of your submission will be used according to the terms set out on the submission webpage, as well as in the ways described in the Privacy Policy.
Our Services are not intended for children under 13 years of age. No one under age 13 may provide any personal information to or on our Services. We do not knowingly collect personal information from children under 13. If you are under 13, do not use or provide any information on this Services or on or through any of its features/register on the Services, make any purchases through the Services, use any of the interactive or public comment features of this Services or provide any information about yourself to us, including your name, address, telephone number, email address or any screen name or user name you may use. If we learn we have collected or received personal information from a child under 13, without verification of parental consent, we will delete that information. If you believe we might have any information from or about a child under 13, please contact us using the Contact Us form below.
Some of our Online Platforms enable users to submit their own content for testimonials, contests, blogs, videos, and other functions. Please remember that any information you submit or post as user-generated content to our Online Platforms may become public information. You should exercise caution in such submissions or posts. We cannot prevent others from using such data in a manner that may violate this Privacy Policy, the law, or your personal privacy and safety. We are not responsible for the results of such postings.
Our Services may contain links to other websites, products, or services that we do not own or operate. We are not responsible for the privacy practices of these third parties. Please be aware that this Privacy Policy does not apply to your activities on these third-party services or any information you disclose to these third parties. We encourage you to read their privacy policies before providing any information to them.
We will post any adjustments to this Privacy Policy on this page, and the revised version will be effective when it is posted. You can determine when this Privacy Policy was last revised by checking the Last Updated date at the start of the Privacy Policy.
If you have opted-in to our marketing communications (or where permitted by law, if you have provided us or we have obtained your contact information), we may send you email messages, direct mail offers, or other communications regarding products or services depending on the method of communication selected. At any time, you may elect to discontinue receiving commercial messages from us by submitting an opt-out request to the contact information below or by following the unsubscribe instructions in the form of the communication you received, as described below. Even if you opt out of receiving promotional messages from us, you will continue to receive administrative messages from us.
Printed Materials: To opt out of receiving printed marketing materials at your postal address, such as advertisements, flyers, or postcards, please write to us at the address set forth in the Contact Us section below. Please be sure to include your name and mailing address exactly as they appear on the printed marketing materials you received.
Emails: To opt out of receiving marketing communications via email, please send an unsubscribe request to the email address set forth in the Contact Us section below or click on the unsubscribe link at the bottom of the email that was sent to you and follow the directions on the resulting web page. Please note that you may continue to receive certain transactional electronic messages from us.
Text Messages: If you have consented to receive text messages, you may opt out of receiving them by using the method provided in the text message or by contacting us as set forth in the Contact Us section below.
Push Notifications: To opt out of receiving push notifications, please set your preferences within your device setting menu.
You can update your account and profile information or close your account through your MMRF account settings. If you have questions about your privacy on the Services or this privacy policy, please contact us as set forth in the Contact Us section below.
If you have any questions, comments, requests or concerns about this Privacy Policy or other privacy-related matters, please email us using the Contact Us section below or write to us at:
Multiple Myeloma Research Foundation (MMRF)
383 Main Avenue, 5th Floor,
Norwalk, CT 06851.
For instructions on how you can access the personally identifiable information that MMRF has collected about you online, or how to correct factual errors in such information, please send an email, along with your first and last name, using the Contact Us section below.
