Real Precision Medicine Requires Real Access to Patient Data
Forbes.com guest post written by Kathy Giusti, Founder and Executive Chairman at the Multiple Myeloma Research Foundation (MMRF) and member of President Obama’s Precision Medicine Initiative Working Group
In an increasingly digital age, immediacy has become the name of the game. A simple Google search gives us answers instantaneously and the cloud allows us to store and recover information at the drop of a hat. We take these for granted, but scientists and medical professionals do not have these luxuries when they are trying to access patient data to search for important treatments and cures.
The lack of easily-accessible health data is a major current unmet need in the United States. I learned this firsthand in 1996 when, at the age of 37, I was unexpectedly diagnosed with multiple myeloma, a rare and fatal blood cancer. As a patient I could see the problems, but as a business woman I saw solutions.